There is an old metaphor: If it isn't broken, don't fix it. Well that's not quite the case, so I've invented a new one for you, ready? *drum roll* 'If it IS broken, but still works a little bit, don't try to fix it, as you'll make it worse!' I made that up all by myself. I am getting the copyright on it tomorrow, so plagiarise me and I'll sue! I won't really, I'll probably forget to.
I've got a bit of a shitty story for you. I had diarrhoea in the week. (Pun intended, by the way). Now you MUST be asking yourself why I am telling you this? I just wanted to make a note of it because it is a recognised side effect with Gilenya. I know it is nothing to do with Gilenya because I've been on the medication for almost a year, but I still thought it was worth the mention.
I was reading an article the other day about Gilenya and it said that it has been approved by the Food and Drug Administration (FDA) for 3 years now. The original stage 3 trial started 4 years prior and as in a lot of cases, you are kept on the drug when the trial has ended, (I have a friend who has been on Tysabri for 11 years now!) means there are people that have been on this 'new' treatment for *gets calculator* - 7 years. I wouldn't mind speaking to some of these people to see how they feel their illness has progressed - if at all - in that time. A link to the article is at the bottom of the page.
In the first 6 months taking Gilenya, I believe I had stabilised, but now that march towards progression is in motion again.
I apologise about ending on a not so bright note, but I don't work for Novartis, so I'm not here to promote their product. I am just saying it as it is.
Have a nice weekend, all.
Dan
http://www.medicalnewstoday.com/articles/244466.php
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