Week 7
My Fingolimod turned up yesterday. The text informed me it would be delivered by 'Dave W between 12.15 and 14.40'. Dave W is employed by BUPA, and he knocked on the door right in the middle of the 2 hour and 25 minute time slot. No queues, delays or cancellations with those babies! I wonder how much it costs the NHS to have a 'profit making' private healthcare company deliver my medication? Mind you, compared to the amount Novartis are stinging them for the tablets, a 6 times a year delivery charge is probably like a drop in the ocean.
If I had money, I'd probably invest it in pharmaceutical companies. Big Pharma is a money making machine, no doubt about it. If they found a cure, these companies would go broke. On second thoughts, I'll keep the £7.36 in my pocket. Or go down the pub!
You probably don't want to hear me waffling on about my thoughts and views that are borderline conspiracy theory, you want me to update you on how I am getting on with the new medication, right?
Well, it is going great. 7 weeks in and it has made no difference to my life whatsoever. I already take 9 tablets and vitamins first thing in the morning, so what harm is one more? None of those regular injections with their side effects, etc. No more 80 mile round trips to a hospital in London for a 1 hour infusion. I'm am completely side effect free too.
From a disease modifying drug point of view - it's happy days from this happy bunny!
Kind regards,
Dan.
Thought I'd say Hi.
ReplyDeleteI'm on Rebif (also accurately delivered to me by BUPA), but have no side effects. It's keeping things at bay and I've had no serious relapse for four years. I guess to go on Fingolimod, you need to have highly active MS which is why I'm still on the injections, I guess.
Anyway, I'll bookmark your site and pop by to see how things are going every now and then.
http://davesmagicalbrain.wordpress.com
HiDave. I'll have a look at your blog too.
ReplyDeleteI was on Rebif for over two years, but my body wouldn't accept it I had horrendous flu-like symptoms after every injection -even after two years!
ReplyDeleteI'm glad it works for you though.